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Bridging the Diversity Disparity: Global Patient Registries Revolutionize Sickle Cell Research | Interview By Polite On Society

Modern clinical trials are witnessing a significant challenge in the lack of inclusivity, particularly in regional registries. These registries often fail to capture the global population's diverse demographics and genetic backgrounds, which hinders the comprehensive understanding of disease heterogeneity and natural history. This limitation restricts the development of effective healthcare strategies that cater to the needs of all affected communities.
Responding to this trending issue, our Founder & CEO, Dr. Harsha K Rajasimha, Ph.D., emphasizes the necessity for global collaboration and government cooperation to rectify biased datasets and ensure accessibility and affordability of advancements in gene therapy. He advocates for pooling diverse datasets, establishing inclusive regulatory frameworks, fostering knowledge exchange, and creating funding mechanisms to address healthcare disparities and promote equitable access to medical innovations.
Further, continuing his talk with Polite On Society on 'Bridging the Diversity Disparity: Global Patient Registries Revolutionize Sickle Cell Research' he adds, "Inclusivity in clinical research is paramount for addressing the complexities of diseases like sickle cell disease and ensuring that healthcare interventions are effective and accessible to all affected populations."
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